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Loss of Taste After Tonsillectomy

On Health & Drugs & Medications » Ear & Nose,Throat

64,567 words with 85 Comments; publish: Mon, 17 Dec 2007 09:33:00 GMT; (90093.75, « »)

I had my hearing test & CT scan of sinuses on Monday...now the doc is talking about putting tubes in my ears...not sure if he means in addition to the tonsillectomy or instead of. Hopefully it's in addition...

The weight loss factor, the eventual end of sore throats, sinus infections...I'm all about it. You guys are talking about losing the taste of sweets & soda...that would only help me avoid the foods I should avoid anyway!

I don't mean to make light of it all...but I'm trying to keep this in perspective for myself.

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  • 85 Comments
    • For those of you still struggling with taste...can you really not taste ANYTHING at all? I'm having trouble tasting certain things (coke and chocolate and syrup are the worst) but there are other things that I think I can taste just fine. I'm 2 months post-op.

      Jenn

      #1; Mon, 17 Dec 2007 16:07:00 GMT
    • i just had my tonsils out on Wed March 1st, so 3 days in so far. My taste seems to be ok, my tongue hurts just a tad bit from the clamp and when i swallow it does feel a bit weird-aside from the pain.

      i would like to start a new post on this-does anyone know how?

      thanks

      #2; Mon, 17 Dec 2007 16:08:00 GMT
    • Hi Molly it all sounds fine and dandy to loose the loss of taste for chocolate and soda and candies, just to loose weight, but I would rather loose weight the old fashioned way at the gym than loose my taste buds. After a meal when you just want that sweet flavor in your mouth, imagine you never can taste the sweet taste again. I go out to dinner and look at at a menu and it really doesnt matter what I order as I cannot taste anything, all food is bland and boring. no amount of weight loss can ease the frustration of taste loss.....................
      #3; Mon, 17 Dec 2007 16:09:00 GMT
    • Like I said earlier......... :rolleyes:

      "I don't mean to make light of it all...but I'm trying to keep this in perspective for myself."

      No scolding necessary. :nono:

      AND it all depends on your particular situation. I'd trade the taste of sweets to make my life healthier/longer.

      #4; Mon, 17 Dec 2007 16:10:00 GMT
    • was not scolding, mearly stating the facts...its been a long frustrating road. :bouncing:
      #5; Mon, 17 Dec 2007 16:11:00 GMT
    • A week after my tonsils were out, I was craving a hamburger -- I was soooo disappointed 'cuz it pretty much tasted like dirt. It took at least a month before I got my taste back to normal -- probably longer. I got a little gunshy after all the disappointments and stopped trying. I do recall that I didn't drink coffee for several months and soda was almost a year or two before I began drinking it again.
      #6; Mon, 17 Dec 2007 16:12:00 GMT
    • wow soda took a year, thats my worst when i go to movies I can tolerate popcorn but the soda tastes so bad, just like carbonated water as the sweet is gone. I was told that the taste buds will eventually regenerate but it could take years...and I guess u r proof of that. I always check on line for hope that someone has improved. I will take a year of healing as a positive over never healing at all.
      #7; Mon, 17 Dec 2007 16:13:00 GMT
    • wow! a Year!!! I guess that would make one eat healthier though to some degree if soda doesn't taste good... My doc said this happens in less then 1 percent of people for the long haul anyhow.
      #8; Mon, 17 Dec 2007 16:14:00 GMT
    • I seem to always fall into that 1% catagory. I was the 1% that haemorraged 10 days after surgery and was admitted to the ER and had to be re-cauterized awake !!!...I was in the hospital for 3 days...so it doesnt surprise me that now I fall into the 1% that cannot taste..what the hell did my surgeon do to me. That is the Question?? I have recently called two other ENT offices and the Drs there have never heard of this happening to their patients. That was so hard to hear because I wanted to hear that this is a common thing that happens to people and that it does heal and improve. But alas it is not common at all we are in a very small percentage of people who loose their taste after a tonsillectomy. With no apparent cure.

      I have now come to terms with the fact that this has happened, and although eating out at a restuarant is not as much fun anymore, I used to love it...now I find myself eating small portions of food that is bland the only positive is that today I bought another pair of jeans, another size smaller, because I keep shrinking as I have gone down 5 dress/pant sizes since surgery. The only positive of this whole experience. :)

      ok so, I just baked a chocolate cake for my two kids and took a small bite, that is all I could tolerate...yuk

      #9; Mon, 17 Dec 2007 16:15:00 GMT
    • well, i'm at day 21 after tonsillectomy ;) I have noticed that when I drink soda, I can't really taste it ;) it tastes like plain ole seltzer water. Yet, I can taste sweetness in ice cream, and chocolate pudding. Weird! But the soda really doesn't taste like much! I'm wondering how long that will last? The front of my tongue is still pretty numb-it has been since I had it done. I guess they 'really" clamp your tongue down!!! when they remove the tonsils!
      #10; Mon, 17 Dec 2007 16:16:00 GMT
    • Well, I can taste soda and some chocolate and a little of syrup, so I think I'm almost back to normal! I'm almost three months post-op.

      How is everyone else doing?

      #11; Mon, 17 Dec 2007 16:17:00 GMT
    • I'm at day 35 and still can't taste most things. I had complications which included post op bleeding at day 3 which required surgery (I fall into that 1% too) and I lost a lot of blood. I can taste in the front third of my mouth but not in the back. So most things taste like cardboard. Vanilla anything is about the most taste I have. I'm still not to have soda, or citrus because of the extra healing the doc says I still have to do. Besides, soda pop just burns my throat. I know that the Lord will heal ALL of my mouth. So keep hang on to that promise and don't let anyone tell you differently.
      #12; Mon, 17 Dec 2007 16:18:00 GMT
    • jenhberry,

      when you say you had bleeding at day 10, what was it like? that is my biggest fear. were you doiing anything to precipitate it? (crunchy foods, a lot of heavy lifting, etc.?) I am sooo nervous about that!

      #13; Mon, 17 Dec 2007 16:19:00 GMT
    • HI there, I was on bed rest most of the time and took it easy for the first 10 days, but that night before I started bleeding I did try some solid foot, it was a spinach pie, but such small bites and I chewed really well, I was at day 10 so that should not have made it bleed, I do think I did not drink enough water and I was dehydrated, someone told me after the fact that I should have been drinking at least 3 water bottles a day. it was so sore for me to swollow that I know I was not drinking enough water.

      I started bleeding at 10pm but was so drugged from the pain killers, percocet, I was too tired to get out of bed to check if it was blood or just saliva, well after about 30 mins of swollowing I thought something must be wrong so I got up to check and huge blood clots were coming up as I was now gagging them up as my stomach was full of blood, I went pale in the face and almost fainted my husband then rushed me to the ER where they had to suction the clots that had formed in my tonsil area. I almost needed a blood transfusion but luckily avoided that, but I was badly dehudrated so I was put on a drip for 2 days and remained in hospital. I still have problems with taste, sweet is the most obviouse, but not nothing tastes as it once did, and I feel my epiglotis at the back of my mouth is still swollen. So hopefully I just need more time to heal and then my taste buds will join the party. keep drinking water stay hydrated and eat soft foods as long as you can. Until the scabs and healing are done

      #14; Mon, 17 Dec 2007 16:20:00 GMT
    • wow, was I happy to find this board and some hope. I had my surgery July 2005, tonsils, adenoids and uvula removed. I had severe sleep apnia and knew that there was only a 10% chance that there would be any improvement at all, I was extremely lucky that after being re-examined for the sleep disorder that I am almost 100%. No more snoring, but, unfortunately, no more tasting sweets in their truer fashion. I first noticed it with Soda, then fruit juices. I almost lost it when I tried to have a vodka tonic and the tonic tasted so bad that I couldn't drink it. A sad day indeed. to see that so many have the same problem when my doctor claimed just a week ago to not have ever even heard of this...well, makes me question him on a million levels. I'm hopeful with my year anniversary upcoming that things get a little better. I don't have the metallic taste, but more of a sour buttery taste after eating or drinking sweet things. Thank god my favorite unsweetened iced tea is still ok, or pretty much water would be my only non alcoholic beverage choice! White wines are really bad now too..I miss enjoying a glass of wine...or champagne for that matter. Part of helping me breathe easier was to involve having my deviated septum repaired...when I heard that a very rare side effect was total lost of smell, and with it taste, I said forget it. I have this problem, which the doctor claims to be clueless about, for certain I'll end up as the one in 1000 people who loses their sense of smell. And, I mean, 1 in 1000? that's actually a pretty high number, not really that rare. Nah, I'm going to stick with my crooked septum, thanks anyway.
      #15; Mon, 17 Dec 2007 16:21:00 GMT
    • I too now have the buttery taste at the back of my mouth, . I am starting to taste a little but nothing to get excited about. Sweet is still gone and orange juice tastes bad. Sodas are still carbonated water. But I think I am slowly getting to taste a little more. I tasted the root beer flavor in my daughters soda yesterday. And that brought me hope..
      #16; Mon, 17 Dec 2007 16:22:00 GMT
    • I am two weeks post op so I am able to eat. Had a burger yesterday and it tasted like dirt (like aot of things lately) I just spoke to my doctor who informed me that this happens to about 1/3 of patients following a tonsillectomy and especially those who have septoplsty done as well( that's me). He mentioned that it can sometimes take up to 9 weeks for your taste buds to be back to normal but he has never heard of anyone not getting their tsat buds back. I guess the anitbiotics really do a num,ber on the taste buds. Hope this helps

      Rich

      #17; Mon, 17 Dec 2007 16:23:00 GMT
    • I am two weeks post op so I am able to eat. Had a burger yesterday and it tasted like dirt (like aot of things lately) I just spoke to my doctor who informed me that this happens to about 1/3 of patients following a tonsillectomy and especially those who have septoplsty done as well( that's me). He mentioned that it can sometimes take up to 9 weeks for your taste buds to be back to normal but he has never heard of anyone not getting their tsat buds back. I guess the anitbiotics really do a num,ber on the taste buds. Hope this helps

      Rich

      Hi Rich,

      I too had septoplasty along with turbinate reduction, tonsillectomy, and adenoidectomy. I'm now at 11 weeks and I still can't take some things. I think taste returning depends on what complications you have after surgery. So I think it takes about 4 to 6 months for taste to come back. :)

      #18; Mon, 17 Dec 2007 16:24:00 GMT
    • Hi Harlee,

      Thanks!! Me too!! I go back to my ENT on Tuesday. I already know he is going to tell me that I still have more healing to do. I know there is still swelling in my mouth because I can't pronounce certain words correctly. Except for vanilla ice cream and vanilla pudding, I didn't even try to eat anything sweet for about 2 months. The first chocolate I had was Dove Dark Chocolate. It took several pieces before I could taste it. It's not as sweet as milk chocolate so that might be a good place to start. As for soda pop, well it has citric acid in it which burns my throat and makes it taste like cardboard. I really miss my naval oranges. Hang in there Harlee, it sounds like you're right on track. It seems like a long time however, it will pass. Fast I hope! Stay well. :)

      #19; Mon, 17 Dec 2007 16:25:00 GMT
    • Hi Everyone,

      I went to the ENT Tuesday and asked him about why I can taste some foods and why some foods taste like cardboard. He said they stretch your tongue when they do the tonsillectomy and that stretches the nerve in your tongue. It should resolve on its own however it will take time. :)

      #20; Mon, 17 Dec 2007 16:26:00 GMT
    • Tia

      your experience sounds awful, hope your feeling better. As you can eat the pizza etc it sounds like your taste will be fine just give it time, the sweet stuff will take longer to be ok but it should come back. cases like mine are rare.

      #21; Mon, 17 Dec 2007 17:20:00 GMT
    • i had my tonsils removed on the 6th of sept. the next day i noticed that my sense of taste had gone. i wish the consultant had warned me of this, because i would have thought twic about the surgery. i am really struggling to eat properly and just burst into tears at meal times. some people are saying 6-12 wks before it comes back. others say 1-2yrs. i am so scared because i cant really imagine living normally without being able to enjoy food. i am 25 :confused:
      #22; Mon, 17 Dec 2007 17:21:00 GMT
    • Hello--

      I am sad to say that I have not regained my "sweet" tastes, and I am now 5 months post operation. For me chocolate is my main taste issue, however all sugar and sweets in general are pretty bad. My doctor, who acted like he had never heard of this, recommended a zinc supplement and also said that nerves take at least 9 months to regenerate if they have been damaged. I feel sympathy for anyone going through this, and people will often tell me how lucky I am to not be able to taste sweets as if it is some breakthrough weight loss plan. However, unfortunately the cravings don't go away and are not satisfied and I find myself trying to compensate with other foods. I am sorry for everyone going through this!

      #23; Mon, 17 Dec 2007 17:22:00 GMT
    • I too am 5 months post-op and still have "taste disturbance". I had my tonsillectomy in May '07 at age 37 for chronic tonsillitis, halitosis and chronic low-grade sinus infections stemming from the tonsillitis...

      My surgery went fine, but then I hemorraged in the recovery room. My ENT fixed me right up on the spot and after I threw up all that blood, I felt much better! I spent the night in the hospital to be safe, and went home the next day. At my ENT's encouraging, I ate regular foods, including a tossed salad for dinner! I was back to work in two weeks and subsequently back to normal, healthy life.

      Only in the last couple months have I noticed this awful metallic, chemical taste, esp. when I eat sweets! How frustrating! Last weekend was my 38th birthday and I could barely eat my birthday cake. It tasted so awful, I almost cried. (Now if only I could use this to my advantage and lose 10 lbs.)

      Anyway, it has made me feel better just to read all of these postings, so THANK YOU ALL. It is comforting to know that there is a chance that I will get my tastebuds back, even if its in a year or two. I will pray for that and a speedy recovery for all of you too.

      #24; Mon, 17 Dec 2007 17:23:00 GMT
    • I am at day 9 post-op (tonsillectomy, 29 y/o male, performed using a "lariat"--which is basically a metal wire that wraps around the tonsil and then tightens around it and eventually removes it--I know, it makes my knees hurt just thinking about it) and have noticed that in the last few days, the taste disturbance has become worse. I have healed significantly and am feeling better as far as the pain (although it would've been nice to know that you're supposed to taper off the hydrocodone, implementing a rotation of Tylenol/acetaminophen, instead of stopping it cold turkey). However, when I woke up to eat breakfast this morning (and I love breakfast), I couldn't find anything that sounded good at all. Previous to this morning, I had made "cold cereal shakes" by blending cereal, milk, banana, and enjoyed it. But today, the thought of eating anything made me want to hurl. The ENT says I have "bruised taste buds" and that it'll go away, although he sort of brushed it off and didn't give me a time table. The back of my tongue has two nodules on the left and right side that look like superficial skin abrasions. Whether the taste disturbance is a result of some sort of abrasive trauma on the surface of the tongue or deeper-down nerve injury from surgery, I do not know. My primary care doc looked at me and said that there is a 95% chance that it will improve within 6 months and a 75% chance that it will improve within 2 months. As long as there is hope of recovery, then I can bear it well and know that I won't always have a foul, salty, yucky taste from the middle of my tongue back. Like many others, I didn't expect taste disturbance following the tonsillectomy. Today I tried a turkey sandwich at work from a catered lunch, but I threw it away after only taking one bite--and tried to fight off the gag reflex. Vanilla Slim-Fast was the only major thing I've consumed today (2 cans) to keep my body nourished. I recommend this and have seen others do the same. Popcorn is also fairly tolerable. I guess while it's healing I ought to forget about myself, go to work, serve others, get involved in a project and try not to dwell on it and get all depressed. Thanks to others who have posted encouraging follow-ups. It's my hope that we can all recover soon.
      #25; Mon, 17 Dec 2007 17:24:00 GMT
    • When I got home last night, I could barely stand it any more. I was feeling so nauseated whenever I even breathed with my mouth open or drank water. Just the thought of eating made me very sick. I took Promethazine (Phenergan) anti-nausea medicine and I was out by 9:30 p.m. It was sweet relief; however, it was very hard to wake up this morning. This morning for breakfast I had another French Vanilla Slim-Fast. In order to fill the void and get essential nourishment, I will look into getting Ensure shakes.
      #26; Mon, 17 Dec 2007 17:25:00 GMT
    • I've discovered the Equate (WalMart) brand of Ensure Plus which you can chug and get nourishment without being too grossed out by the phantom taste that can come after a tonsillectomy. This morning, for breakfast, I stopped at WalMart and picked up a case of the 8 fl oz chocolate shake which has 350 calories, 11g fat, and 13g protein. I guzzled two of them on the way to work, had a Slim-Fast for lunch, and another Ensure Plus at 4:30 in the afternoon. I bought a chocolate brownie CLIF Bar energy bar which tasted OK, but still kind of grossed me out, so there's about 2/3 of it left. It seems like it gets better every day.
      #27; Mon, 17 Dec 2007 17:26:00 GMT
    • I'm at 2 weeks post-op, I called my ENT (yesterday) and I expressed my concern, since I had dropped to 138 lbs. He called in a prescription for prednisone steroid anti-inflammatory pills. It's a 6-day set of pills that you take in tiered doses. I am on the second day of the pills and I have definitely noticed improvement. (I have also exercised a lot of faith recently and I believe that God does work miracles).

      I have found that fried eggs are very edible, and that it is slowly getting better. I just had a conversation with a co-worker who said that she had her tonsils out at age 19 and had the same taste disturbance. She said that after a few months it improved and a year later it was completely gone. She said she had the same weird, salty taste in her mouth, and anything sweet just tasted salty. She said her taste buds had come off! Her doctors told her that since all her taste buds had been damaged (removed), that they would take time to grow back, and the taste buds that taste salty foods grow back first. Whether or not they were just feeding her a line or whether it is true, I don't know.

      My ENT said that because of the swelling in the tongue, the taste is not normal, and the anti-inflammatory medicine is intended to reduce the swelling in the tongue. I hope this information helps someone else out there. There is hope!

      #28; Mon, 17 Dec 2007 17:27:00 GMT
    • I think that the ENTs really, really downplay how the clamp used in the procedure affects the tongue during the healing process. They really clamp it hard during the surgery and it does tend to cause some temporary damage to the taste buds until your tongue is able to regenerate itself. While yes in rare occaisions the damage is permanent, it's really supposed to only be temporary until the swelling improves and the taste buds get back to normal. That's why the steroids help, because it speeds the de-swelling part.

      All I can tell everyone is just try to be patient. It's a long road to recovery, but it does eventually get better!

      #29; Mon, 17 Dec 2007 17:28:00 GMT
    • i had my tonsils removed on the 6th of sept. the next day i noticed that my sense of taste had gone. i wish the consultant had warned me of this, because i would have thought twic about the surgery. i am really struggling to eat properly and just burst into tears at meal times. some people are saying 6-12 wks before it comes back. others say 1-2yrs. i am so scared because i cant really imagine living normally without being able to enjoy food. i am 25 :confused:

      1 nov 2007: hi my taste is starting to come back. so releaved i can taste everything its not 100% but i can taste. bring on the mince pies, haha. how is everyone else doing?

      #30; Mon, 17 Dec 2007 17:29:00 GMT
    • I'm a little over three weeks post-op and I am happy to report that there is significant improvement. My taste is no longer as foul and nauseating like it was 7-10 days after the tonsillectomy. I still do have an odd taste in the back of my mouth that tastes mildly sweet (sort of like it tastes after you gargle with sweet mouth wash), although, ironically, I am not tasting sweet things as strong. I love eating hot, spicy things (especially a super hot chili with habanero peppers). The heat distracts me from the phantom taste and actually tastes great. I just wanted to offer hope to those who may be struggling with this. Patience and faith will get you through.
      #31; Mon, 17 Dec 2007 17:30:00 GMT
    • 9kids

      Where are you and how are you doing?? How's the taste thing going? I don't have a loss of taste, I am experiencing like a cross betwee dry & burning tongue. My lingual tonsil surgery was 10/18/07. Please let us know how you are now?

      Thanks,

      LaVonne

      #32; Mon, 17 Dec 2007 17:31:00 GMT
    • I'm at 7 weeks post-op and there has been great progress relating to my taste disturbance. The phantom taste is not as strong and is gradually diminishing, although it is still there and has changed to a bitter, burnt toast flavor. But, I was still able to enjoy Thanksgiving and I am looking forward to Christmas treats. I'm able to eat most everything without feeling nauseated. I'm still a sucker for strong flavors like the vinegar in hot sauce and spicy things. Sweets are slowly tasting sweeter as well. Best regards.
      #33; Mon, 17 Dec 2007 17:32:00 GMT
    • I'm three weeks past surgery day and had no real complications with my tonsillectomy. But my sense of taste is almost nil. I almost cried after finding this forum. Everyone seems to be having the same problem, with sweets, chocolate and cola's being the worst and no one completely recovering. Does anyone have a happy ending? I'm feeling rather dejected. Also, pain is gone, but swallowing still feels strange. Almost like everything I swallow is a huge uncomfortable lump going down. Will this go away?
      #34; Mon, 17 Dec 2007 16:27:00 GMT
    • I am 54+ and had my tonsils out in July. Wasn't the greatest experience but not too bad. I was only out of work for a week. I still cannot taste sweets and a few other things. Or rather it not that I can't taste them, it's just that the taste is not very intense. You know how chocolate is when it melts in your mouth:) I think you would have to eat 2 or 3 pounds of the stuff before you felt like you had that chocolate taste. Almost all sweets are like that for me. There are a lot of other foods that just don't taste right but I can't say they don't have a taste. Some foods leave an awful after taste in the back of my throat also. Of course it doesn't stop me from eating everything. I keep thinking that this time it will taste good. But it doesn't!
      #35; Mon, 17 Dec 2007 16:28:00 GMT
    • I must be lucky, because I had an extremely sensitive pallet before surgery and have not suffered any extreme loss of taste, post op day 15 now. It may be muted some, but over all I am good... my tongue was swollen for the longest time, and had these funny U shaped clamp bruises on it and hurt like all get out, but loss of taste has not been a factor. I still have swollen taste buds.. and patches were it looks like taste buds have been striped off, but it doesn't seem to have effected me very much... praise be.

      Wishing you all the best and a expential recovery curve.

      MG

      #36; Mon, 17 Dec 2007 16:29:00 GMT
    • I talked to my doctor this morning. He says pretty much what all the others are saying; that I need to be patient, give it a couple more months, etc. Well, I realize it's only been 3 weeks for me, but I know it'll take longer to get my taste back than that, from what I've been reading. It's all very depressing. He also says that since I have full sense of smell that it shouldn't be so bad since smell makes up for "80% of your taste, anyway." Well, if I can hardly taste ANYTHING, what good is smell? All it does is make me WANT to eat everything and get depressed when it tastes like nothing! I'm worried about weight loss, too, because I don't have much to lose and I certainly don't want to look skeletal! I really don't have much patience with this, so what will I be like if it sticks around for 6 months or more? Clinically depressed and needing medication? I love being a happy person, and this is really bringing me down, as you can see.
      #37; Mon, 17 Dec 2007 16:30:00 GMT
    • Today is day 12 for me, and I have also noticed some reduction in taste. I can taste chocolate, but popsicles just feel cold and kind of flavorless (not totally, but mostly) and coffee doesn't taste right either. I guess I haven't had too much time to focus on it so far because I have had some complications (heavy bleeding on day 10 that required re-cauterization). But there is no question that things aren't quite right taste-wise. Fortunately, I'm not that much of an eater of sweets in general, but I DO like my food, and I have been dreaming of lovely things like buttered toast with jam and grilled cheese, and it will be horrible if I can't enjoy them once I am able to actually eat them again :( I just hope that, with time, the tastebuds will recoup. I've hear it can take weeks to months, but that's better than never, right? Hang in there - I thnk it is the VERY rare person who suffers permanent taste loss from this surgery.

      Jillolina

      #38; Mon, 17 Dec 2007 16:31:00 GMT
    • Jill, I sure hope you don't end up having any kind of severe taste loss. I only realized for sure that I did on day 21. But you're right, I probably won't lose it forever and I need to keep my chin up! :) I'm already figuring out some things I can handle eating, such as ramen soup because it's salty, I guess.
      #39; Mon, 17 Dec 2007 16:32:00 GMT
    • I'm 6 weeks post op and looking everywhere for someone to say how they experienced this but it finally went away. From revieweing the clinical literature I could find on-line, there are two kinds of "Taste Disturbance" following tonsillectomies. One is a loss of taste, and the other a distortion of taste.

      I seem to suffer most from the distortion of taste ("dysgeusia" it's called) and frankly it's absolutely awful. Unless the food is very wet or saucy, like soups or stews, the fould taste seems to just well up from the back of my mouth. Bread and cake are about the worst. Crackers, chips, pretzels pretty bad too.

      I know this forum is most likely to be read by sufferers and once you get better you stop posting. If you stick with it so will I and eventually somebody starts to get better and gives the rest of us a bit of hope.

      signed,

      Sick of soup

      #40; Mon, 17 Dec 2007 16:33:00 GMT
    • Dear Sick of Soup,

      Hi. I've been telling people the same thing. That I sure wish people would write to this forum to let us know if their taste really did come back and how long it took. I, too, could sure use a ray of hope! It's been 5 1/2 weeks for me now and still the taste distortation. It's just so depressing! I'm actually dreading the disappointment of Thanksgiving and Christmas. Nothing tastes very good at all. ALL sweets for me are completely HORRIBLE and inedible. I definately will write to this website to let everyone know if my taste ever returns. Keep me up to date on yours, too, ok?

      #41; Mon, 17 Dec 2007 16:34:00 GMT
    • Hey All.

      Alright guys. I never really lost much in the way of taste. Everything tastes just fine.. and just shy of 5 weeks post operation I am probably operating at 90 % efficiency. I even had to resume my weight watchers so that I could continue to lose weight. Down 17 pounds with another 30 to go. Then I will be at my optimum body weight.

      I won't say I am 100% until I can get my sleep routine, back on track. I have sleep apnea and the CPAP isn't quite doing it for me like it should. I have improved due to my surgery, but my sleep apnea is by no means cured. I am guessing with my increased airway capacity that I am needing an increase in my CPAP pressure... waiting to see and get this confirmed by my sleep doctor.

      Sincerely,

      MG

      #42; Mon, 17 Dec 2007 16:35:00 GMT
    • Some on-line research I've done suggests that there is a possibility of damage to the Lingual Branch of the Glossopharyngeal Nerve, particularly in patients with significant scar or fibrous tissue in the tonsillar bed.

      I fear that as a 52 year old with a long history of tonsil infections this may be a decription of my condition.

      if you're interested, here is the link to one of the papers covering the subject.

      It's a little technical, but certainly the facts jump out. It won't appear here as a link, so you'll need to copy and paste into your browser.

      http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?itool=abstractplus&db=pubmed&cmd=Retrieve&dopt=abstractplus&list_uids=12816225

      If it doesn't work, just ****** "Tonsillectomy and Taste disturbance", you'll find it and more.

      most worrisome is some indications that it may be reversible in the 2 year period afterwards, but in some cases may be irreversible. The numbers indicate that this is fairly rare however, so being hopeful is a reasonable path.

      I'm hanging in there and hoping for the best, you all do the same, and report back positive progress OK?

      p.s. I'm discovering lots of good soups though. Cambells Healthy Request Chicken and Sausage Gumbo is one of those few things that still manage to taste pretty good.

      #43; Mon, 17 Dec 2007 16:36:00 GMT
    • This is encouraging:

      From:

      Review Article

      "Re-establishment of olfactory and taste functions : an overview of available therapies"

      Taste disorders after tonsillectomy caused by pressure on the lingual branch of the glossopharyngeal nerve are rare (0.31%) and commonly disappear spontaneously

      That's the kind of numbers I was looking for, less than 3 tenths of a percent and commonly disappear!!!!!!!

      full text, if you're interested, is at:

      http://www.egms.de/en/journals/cto/2005-4/cto000012.shtml

      #44; Mon, 17 Dec 2007 16:37:00 GMT
    • It was exciting to read Cyberg's findings about the taste spontaniously returning. That would be so exciting! Unfortunately, things are tasting even worse for me lately. Now, I can barely drink my coffee and even water tastes odd!! My vanilla slim-fast has been my only true healthy thing I've been eating every day and now even that is tasting rather gross, instead of like nothing. But, I found out yesterday that I'm pregnant, so maybe that explains why things are even worse. I'm quite worried about being able to eat enough to feed this baby when I can hardly eat enough to keep me alive!! I can't wait for the day when I can write and say that my taste has returned!

      Signed,

      9kids

      (soon to be 10kids!)

      #45; Mon, 17 Dec 2007 16:38:00 GMT
    • Well, unfortunately, things have only gotten worse for me. Now I seem to have that horrible metallic or buttery taste in the back of my throat that others have complained of. I don't know if I would describe it as that exactly, but it's all in a matter of perspective and I'm sure we are experiencing the same thing. It's a difficult thing to describe, so maybe metallic or buttery would work. And the pregnancy is making me very hungry all the time and it's extremely frustrating, as I can't seem to find enough things I can eat. This is so hard for me and I find that I am really losing patience and am beginning to worry that it might take one to two years after all. That just seems so long! Better than forever, though. I can't even bear to think that that might be possible! Even water tastes horrible these days! Water!!! Has anyone else noticed this? Every day I check this forum with hopes that someone has completely recovered. I need hope!!!
      #46; Mon, 17 Dec 2007 16:39:00 GMT
    • day 26 after my surgery. half of my tongue is still really numb. i have loss of taste especially in salty things and coke/soda etc. but it is the numbness that really worries me. doc says it is normal. but doesnt explain much. anybody with this problem?
      #47; Mon, 17 Dec 2007 16:40:00 GMT
    • Hi all,

      I had my tonsils out a little over a year and eight months ago. I posted here for a while after my tonsillectomy but I have not posted here in a long time. Just wanted to give those of you that have recently had surgeries an update from someone that had theirs out a long time ago. I suffered a severe loss of taste afterwards. It started out where everything tasted metallic to the point I almost could not eat most things. It gradually improved somewhat to where I don't have the metallic taste anymore, but not very much regular taste. As I said, it has been over a year and a half now and my sense of taste has not returned to anything near what it used to be.

      Some days are better than others and some things taste better than others. I cannot taste sweets very well so chocolate and soda are ruined for me. I can taste salty things better than unsalted things but I was not a big salty food eater before so it doesn't appeal to me much now either.

      I've pretty much just given up and gotten used to it. I've unintentionally lost a lot of weight and still don't enjoy eating food as much as I used to. I went to my ENT several times after the surgery and he just kept telling me to be patient and allow for more healing. Well, my 2 years are almost up and I am afraid I am going to be one of the ones where this is permanent.

      I wish you all well in your recoveries and I am sure this will not be long-term for most of you. Even given the fact I cannot taste things normally I would still have the tonsillectomy all over again. The recovery period was horrible but I was so sick before it I have to say my overall health has greatly improved.

      Speedy recoveries and happy holidays to everyone :)

      #48; Mon, 17 Dec 2007 16:41:00 GMT
    • Thank you for the update on your taste loss. Although it's scary to hear of someone not fully recovering after so long, it's always nice to hear the outcome. It is disheartening, but it makes me accept the fact that this is definately a possibility for myself, also. It's been almost three months for me, with no improvement. That feels so long! I can't imagine dealing with this for as long as you have! I'm so, so sorry!!! Promise me that you will let us all know if you ever receive your taste back. It would be the best news!!! Good luck!
      #49; Mon, 17 Dec 2007 16:42:00 GMT
    • Hey 2catfans and Harlee! Where are you guys? Did you ever recover from your taste loss?? You both really seemed to be experiencing the same things I am and I would really like to hear if either of you have some good news for the rest of us. Cyberg and I are still suffering. Even if you still have taste loss, I need to know about that also! Please write!!!
      #50; Mon, 17 Dec 2007 16:43:00 GMT
    • ok, day 21 for me. everything tastes crappy. I've lost over 20 pounds since operation. no sweet tastes, or very very little. coffee tastes evil. I had on complication from tonsillectomy.. my throat had swollen so badly on day 6 that not including pain, it was physically impossible to swallow, including my own saliva. I was hospitilazied, put on fluids, morphine, anti-inflammitories and more antibiotics. I am almost healed. a little soreness when swallowing. It constantly tastes like I'm sucking on aluminum. I've gotten used to drinking distilled water. even tap water tastes bad. I WILL keep updating on this board. on an every few week basis. planning on having boyfriend help me chart where my taste is lost. as in flavors/areas. still trying to find a relatively reliable way to do it. I'm sure there's some elementary school thingy for it. I vaguely remember doing something similar in school. Swallowing feels wrong. like throat while not hurting all that bad is still very sensitive...possibly extra sensitivity to pressure so making things seem bigger than they are? not sure either... just thinking in text. reply with ideas, guesses... please!
      #51; Mon, 17 Dec 2007 16:44:00 GMT
    • I, too, have had some loss of taste. I'm on day 16, post op. It seems like things just taste really dull and just off. And I do feel like I have more bitter taste than sweet or sour. I also sometimes get a slight metallic taste in my mouth. It's like my taste buds were brushed away.

      I forgot to mention it to my ENT on my two week visit because of some other more pressing questions (ie, terrible neck pain and head aches). From reading these posts, it seems pretty common. However, if I don't get my full taste back in a few more weeks, I'm definitely going to talk to her about it.

      #52; Mon, 17 Dec 2007 16:45:00 GMT
    • Well, I'm three and a half months post-op now and am having VERY slight improvements, I think. Food is now more enjoyable and it seems like I have gained some improvement in tasting flavors and spices, etc. I still don't really know if I've just gotten used to it somewhat and am forgetting what things are supposed to taste like, or if I really can taste better. Either way, food is more enjoyable so therefore it is an improvement, regardless. Sweets are still hardly any better, though even sweets seem to have more flavor than before. They definately aren't good by any means, but I do have hope now. Even if it's a very very slow process, it's better than never getting better at all!! I saw my ent last week. He wanted to put me on steroids, thinking that it could quicken healing, but I'm pregnant, so I can't. I thought maybe some others could ask their doctors about this and maybe give it a try. Anything is worth trying! It seems like new people write in now and then, dealing with the same kind of thing but no one writes in to say they've had a full recovery. It's very scary. I really wonder if the sweet thing will ever improve completely, because of what I'm reading, that is the one flavor that is so resistant to healing all the way. Anyway, I find that I am not nearly as depressed as I was about this whole thing. The human body is an amazing thing. We learn to deal with the most awful things!
      #53; Mon, 17 Dec 2007 16:46:00 GMT
    • So I baked some chocolate chip cookies tonight hoping that I would be able to taste the chocolate... not so much. I am on day 12 and I still cannot tast chocolate or soda. I am eating regularly, crunchy and soft solid foods. I have no problem with any food other than chocolate and soda. I'm scared that I will never get that taste back!! :eek: Figured I could vent since everyone else seems to have about the whole taste thing. All I can say is that the best thing out of this surgery is that I quit smoking!!!!.. and maybe lost about 5lbs, which I notice are coming back on really quick!! Good luck and pray we can all "taste" normally again someday!!
      #54; Mon, 17 Dec 2007 16:47:00 GMT
    • I'm at day 35 and still can't taste most things. I had complications which included post op bleeding at day 3 which required surgery (I fall into that 1% too) and I lost a lot of blood. I can taste in the front third of my mouth but not in the back. So most things taste like cardboard. Vanilla anything is about the most taste I have. I'm still not to have soda, or citrus because of the extra healing the doc says I still have to do. Besides, soda pop just burns my throat. I know that the Lord will heal ALL of my mouth. So keep hang on to that promise and don't let anyone tell you differently.

      I'm disconcerted after reading these threads - I didn't know beforehand that there was a chance I could lose my sense of taste after a tonsillectomy. I'm 17days post op, but as described above I am experiencing the same symptoms of only being able to taste things like vanilla and then only at the front 1/3rd of my tongue. Once passed that area everything tastes like a burn on the back of my throat, yuk!!

      The problem is once I've been able to start swallowing I've been trying anything and everything hoping that something will taste of something and being disappointed in the process. This is so frustrating and scary, especially reading that some still haven't got their taste back even after a year.

      Thanks to you all for allowing your troubles to be entered on this site, I am truly grateful to you all. I was beginning to wonder if I was the only one this has happened to.

      #55; Mon, 17 Dec 2007 16:48:00 GMT
    • I also went into the tonsillectomy not knowing that I could lose my sense of taste. I had my tonsillectomy on Oct 17, and on Thanksgiving, things didn't taste quite right. I kept thinking there was something wrong with the apple pie I made, but everyone else said it was fine! By Christmas, however, I could taste everything again. So, don't get discouraged right away. 3 weeks probably isn't enough time for everything to be back to normal. I wasn't back to normal for almost 2 months.

      And you're right - this board is a wonderful place. :angel: Almost 4 months post-op, and I'm still visiting it daily to offer hope to those who feel like giving up, because I was one of you not too long ago. Best wishes.

      Kelly

      #56; Mon, 17 Dec 2007 16:49:00 GMT
    • Thanks for the hope Yellowbird. I'm just over three weeks post-op now. My taste is still terrible. I tried to drink a latte today. After about three sips I poured it down the drain. It tasted like bitter metal in my mouth! So sad, because I love coffee. I feel like eating is a waste and it's certainly not enjoyable.

      I'm really glad to hear that you regained your taste. It makes me feel better that I'm not the only one experiencing this. I've tried to explain it to family, co-workers, but I just don't think they really understand what it's like.

      On the positive side, I'm looking forward to a strep throat/tonsilitis free life after I'm completely healed and back to my normal energy level. I'm back to work, but exhausted when I come home. I have a job where I'm on the go a lot!

      #57; Mon, 17 Dec 2007 16:51:00 GMT
    • I am now four and a half months post-op and can happily say that my taste is improving daily, bit by bit. Many sweets are now pretty good and even the sweets that I still don't enjoy yet are much better than before, so I know that I'll get there. It might take a very long time for full recovery, but just knowing that it will happen makes all this easier to bear. The first few months when there was zilch improvement was SO difficult and I was really beginning to believe that I would have this for life. It was extremely depressing. I'd really like to hear how everyone else out there is doing.
      #58; Mon, 17 Dec 2007 16:51:00 GMT
    • I am one month post op today and it still feels like I have a hairball in my throat! I still have a funny voice (like you do when you have tonsillitis) and swallowing is still a little difficult but everything tastes weird! I had a can of pepsi at the weekend and it tasted so weak (it was regular and not diet). Even my cocoa pops taste bland in the morning!

      I guess that it takes some time.

      #59; Mon, 17 Dec 2007 16:53:00 GMT
    • Hi, I was looking for a post by Pete sent in Oct 24,2005 outlining his tonsillectomy experience and was wondering if you read it. If you can find him he will be the litmus test as to taste coming back after a tonsillectomy.

      Anyway 4 months ago I had the tonsillectomy and all of us are not imagining the accompanying loss of taste. I found you post interesting since we both had the surgery around the same time. Your optimistic and I'm getting pessimistic. Pete talks about nerve damage from the surgery, the sheating around the nerves causing our problem. He talks about 6-12 months if it does return. Anyway, I'm getting frustrated with this since I was never informed about it.

      I can't seem to taste proteins and marinara sauces. Liquids seem to be fine, coffee, shakes, etc. I've got an appt with my surgeon this Fri. I must say, I'm not sure what to believe, at this point.

      Let me know what you think.

      Thanks

      #60; Mon, 17 Dec 2007 16:53:00 GMT
    • I feel your frustration. If you like to eat this is pure punishment, pure and simple. Like you, I wasn't informed either. I'm as aggraveted about this as you are. Nobody seems to understand the frustration of losing one of your senses. I'm clueless at this point, 4 months later. Do I have nerve damage from what the the surgeon had done or is this abnormally normal, that is the question.

      Well hang in there. You're not imagining anything. This is real and this is what tests your mettle. No pun intended.

      Let me know how you do.

      Good luck!

      #61; Mon, 17 Dec 2007 16:55:00 GMT
    • I've sent several posts to others as well on this board and you are describing my condition as well. I had the surgery 4 months ago and everthing is bland It's like tasting monterey jack cheese when you're eating sharp provolone. Like if food were a color they would all be dull not bright and sharp. I'm going this Fri. Maybe I'll ask about steroids that seems to be a fresh idea. As I was pointing out on my other posts, how do we figure out a solution when these doctors are surprised by our condition? What, no one ever came back to them with this issue. Give me a break. They must know something why aren't they leveling with us both before and after the surgery. What are we in the dark ages?

      I wish I could laugh about this but somehow it's not so funny.

      Regards,

      Tony

      #62; Mon, 17 Dec 2007 16:56:00 GMT
    • My taste is almost back to normal, though I'm not craving sweets much at all. I've never been a huge sweets eater, though, so it's not a big deal. I noticed while I was recovering that my normal minty gum tasted like it had been grilled! It was very smoky tasting to me...so needless to say, I've been chewing fruity gum ever since! :angel:
      #63; Mon, 17 Dec 2007 16:57:00 GMT
    • I seem to have the opposite problem. The ONLY things I can taste normally are sweets. Everything else is very bland, or just tasteless. It really is disheartening. Of course this is only post-op day 4 for me...and my tongue is still VERY painful and swollen, and parts of it are still numb. I think if I had been told that this was a possible side effect, I would have said "no thanks." Eating is so pleasurable to me, I can't imagine never being able to enjoy a good meal again. I can't smell anything either (also had a septorhinoplasty) but I'm hoping that's just because I still have splints in my nose. I will pray to God every day that I gain back all my senses... in more ways that one! A person can lose their mind going through something this traumatic!! :(
      #64; Mon, 17 Dec 2007 16:58:00 GMT
    • I am so happy to have found this forum. I am 37 and 10 days post-op from my tonsillectomy. My taste is definately off but I am having another issue and am hoping someone else out there has experienced it as well. I've noticed it about 4 days after my surgery when, as gross as it is, started brushing my teeth again. My gums and tounge were super sensative to my toothbrush, which is fairly soft. It felt (and still feels) like I am using a wire brissle brush and I have actually caused some damage to my upper front gums (I am barely touching them). I also have noticed that certain foods feel like acid on my tounge and roof of my mouth, like lifesavers, pumpkin pie, toothpaste, soy sauce. My gums and roof of my mouth seem very pale. I'm going to start back on vitamins (multi, B and C) and see if that helps. But has anyone else experienced this?
      #65; Mon, 17 Dec 2007 16:59:00 GMT
    • Have you been drinking enough water or fluids? Pale gums can be a sign of dehydration.

      I'm having a tonsillectomy/possible adenoidectomy next Monday. Reading these posts has been a little disconcerting. If I have any addiction, it would be a food addiction and to lose my taste for any period of time is going to be hard. But I guess its better not to taste than not to breathe, as my last episode of tonsillitis forced my tonsils to become so swollen that my throat basically closed up. No fun.

      #66; Mon, 17 Dec 2007 17:00:00 GMT
    • It's been almost 4 weeks for me, and MOST of my taste has come back. The sides of my tongue are still a little numb, and that's where I have trouble tasting. Some things just don't taste the same, but thankfully seafood is not one of them. As long as I can still taste my favorite foods, I'm content! Hopefully the rest heals in good time too. Good luck everyone!
      #67; Mon, 17 Dec 2007 17:01:00 GMT
    • To follow up on my last post. I've been taking my vitamins and the color in my gums and roof of mouth have returned to normal. I started using an extra soft toothbrush which really helped, and now I am back to my normal toothbrush. My tounge is still somewhat tender to it but getting better. As for the acidic reaction I'm guessing the tissues in my mouth just became extremely sensative. It has been 15 days post-op. My tounge feels pretty normal again, taste is back to normal, soy sauce and toothpaste do not sting anymore. I haven't tried lifesavers yet and figure I'll give it another week being citric acid is pretty strong.

      I went back to work this past week and due to being a week and a half out I had meeting after meeting after meeting, and all the talking really made my throat and neck sore. I should have taken it a little slower because I think it has slowed my healing a little bit.

      With so many people who have had reoccurring sore throats or tonsil infections has anyone been tested for Lemierre's Disease? I saw a Discovery Health program about it and found this great article on it called "Warning over killer throat disease" http://news.bbc.co.uk/1/hi/health/2240524.stm

      #68; Mon, 17 Dec 2007 17:02:00 GMT
    • Hi guys, I'm 20 this year and I'm into my 4th day post op. The tip of my tongue feels numb, and certain sweet foods taste strange to me. I've had vanilla and chocolate ice cream and they didn't taste like they should. But I am already able to eat chicken, tuna and sardines. Just that it hurts quite a lot when I swallow! My doc said that the sooner I start eating solid food instead of soft foods like shakes and drinks it'll heal quicker. I'll update you guys soon. Meanwhile, I wish everyone a speedy recovery and hope you fully rediscover your sense of taste!
      #69; Mon, 17 Dec 2007 17:03:00 GMT
    • :wave:

      Hi Everyone,

      I just joined and I wanted to tell you my story. I elected to have this surgery and was NOT informed of any complications. I know better to ask about problems and all they told me was that at my age I might bleed longer and recovery is longer. I had a tonsillectomy in Sept. of 2005. I had many complications after my surgery with infections and not being able to eat anything hot or cold. The pain I suffered for weeks. Then I was only able to eat liquid foods. I lost 35lbs in a matter of 5 weeks. I couldn't eat anything solid. I would choke and gag. The doctor just kept putting me of different meds. Then I had to get a video swallow study done. They thought I would have to have therapy to re-learn how to eat solids! When I started slowly back on solids foods the food didn't taste the same. When I mention this to the surgeon he said it was because I hadn't eaten solids in a long time and it would come back. Well it didn't come back, I hired a Lawyer to file a Law suit and when I went to his doctor, his findings were that because my nerve wasn't cut there isn't a good case. So Im screwed!! I can taste some sweet and bitter. But nothing else taste good to me. I am an Italian who cooks homemade sauces etc... and now I can't even taste my food!! What kind of life is this!!! So for the next half of my life I won't be able to taste my italian food all because of some doctor and they can get away with this!!! I am so upset over this, so I know how you all feel. Im sorry to tell you all that after almost 2yrs my taste hasn't come back!!!!!!!!!!!

      Andrea

      #70; Mon, 17 Dec 2007 17:04:00 GMT
    • My tongue is still numb on one side. The side that was 3 times larger than the other. I just had surgery today and I think I might have had a reaction to the anesthesia. I shouldn't still be numb on one side. I do have my taste as I have been eating jello and apple sauce. I feel really bad that you can't taste your pasta. I am a big food lover!
      #71; Mon, 17 Dec 2007 17:05:00 GMT
    • Sorry to hear about your complications Lady Di. And Tonsils Out... keep us posted on how you are doing.

      My sense of taste is totally off, but that may partially due to having a septoplasty as well as the tonsillectomy.

      I've been a bit disappointed... given the green light to eat ice cream for breakfast, lunch and dinner if I wanted, but it all tastes like fluffy, tasteless, mush - ha! Even a strong flavor like strawberry has no taste. Oh well. Actually, this is day 5 for me, and I find that I prefer eating something luke warm or room temp. The really cold stuff tends to hurt more.

      My tongue has been sore only on one side. As it gets time for another dose of pain meds, sometimes my tongue bothers me as much as my throat.

      #72; Mon, 17 Dec 2007 17:06:00 GMT
    • Hi Guys, I am now 2 months post op and i am still suffering dreadfully with not being able to taste anything sweet. I find that even fruit with a sweet taste even tastes off (Maybe a bit like Crayons) Horrible! I am so sick of it and have found that all i am eating is foods which have a strong salty flavour ie:Toasted cheese sandwiches or crisps.

      Anyone gone through this and come out the other side?

      #73; Mon, 17 Dec 2007 17:07:00 GMT
    • Hi Guys, I am now 2 months post op and i am still suffering dreadfully with not being able to taste anything sweet. I find that even fruit with a sweet taste even tastes off (Maybe a bit like Crayons) Horrible! I am so sick of it and have found that all i am eating is foods which have a strong salty flavour ie:Toasted cheese sandwiches or crisps.

      Anyone gone through this and come out the other side?

      Hi, Trish86. I'm so sorry to hear about what you're going through. I am now almost ten months post op and my taste is still off. But I have to admit that it has improved immensely and the improvement didn't even start till about four months after surgery. Very very slowly since then it has continued to improve. I feel really bad for you right now because I know that around two months post op is when I was really beginning to feel depressed about the whole situation, wondering if it would ever get better. I even wondered for quite a while after I did have a little improvement if I was imagining it because it was so slight of an improvement. It seemed like maybe I was only getting used to it. And I have to admit, you do get used to it to a certain degree and it makes things easier to deal with. Your brain forgets what things are supposed to taste like after a while and you appreciate what you CAN taste from any given food, instead of what it CAN'T. There are plenty of sweets that I can enjoy now, though chocolate still isn't anywhere near as wonderful as it once was and I honestly don't think it ever will be. Pop still isn't any good either, though I can taste the flavor now, just not too much sweetness in it. I'm simply counting my blessings that I can enjoy SOME sweets, and everything non-sweet is pretty much back to normal. Actually, it isn't, but it has improved so much and I've gotten so used to it that I don't notice the difference too much anymore and I don't get all depressed and upset about it anymore. I sure hope your taste improves too, though you may have to wait a while longer before you notice anything. It sure would be nice if you continued to keep everyone else posted on here about your situation. I still wonder what happened to everyone else on this post who have stopped writing. Keep your chin up! I know what you're going through!

      #74; Mon, 17 Dec 2007 17:08:00 GMT
    • Hey 9Kids,

      Thanks a mill 4 ur Reply! Yeah Not being able to taste really sucks! Its also a problem becos when u dont find food all that appetising you dont really feel like Eating! Glad to hear that your sense of taste has improved! Something to look forward to!!!

      Im not feeling to depressed tho thank God, too many other things to be thinking of! Im more annoyed that the Specialist that I paid a fortune to see did not tell me that i wouldnt be able to taste after the operation!

      I was just wondering if at any stage When you would eat lets say something like chips that the taste would linger in your mouth? And make your mouth taste rather strange?

      #75; Mon, 17 Dec 2007 17:09:00 GMT
    • Trish,

      My ENT didn't mention a THING about loss of taste, so boy was I in for a surprise when I sat down at Thanksgiving dinner (had my tonsillectomy Oct 17 last year) and kept asking my family if the turkey tasted strange to them. It tasted almost like someone sprayed a cleaner nearby and some got on the turkey - very chemical-y. Everyone said no, and then I realized, as I tasted some other things that they were strange too. I was angry that he hadn't mentioned it, but glad when it finally disappeared sometime before Christmas. So, about 2 months for me before it got better, and things are back to normal now. There is light at the end of the tunnel - I hope you are back to tasting regularly soon :)

      #76; Mon, 17 Dec 2007 17:10:00 GMT
    • It takes time to get your sense of taste back after having a tonsillectomy. It took about 2 months for me to notice an improvement, and even then, it was only by degrees. What you all need to realize about this surgery is that it's a very long recovery. Even after you feel like you're semi-back to normal again, it still takes time after that for certain other things to get back to normal, such as your voice and your sense of taste. It just takes time and all of you need to be patient. The permanent loss of taste is extremely rare and there is no reason for any of you to think that you're in that tiny percentile that has had that happen to them. You just need to be patient and it will eventually come back again. I think you're all just expecting everything to go back to normal too soon. It really takes a very long time to recover fully, which is something no doctor or surgeon will ever tell you. But those of us who have been through it and recovered will be totally open an honest about it and let you know that it takes TIME. That's all that you can do is just be patient and let yourself heal. There's nothing else you can do.
      #77; Mon, 17 Dec 2007 17:11:00 GMT
    • Hello everyone,

      I am 31 years old, a male, and at 7 days post-op (tonsillectomy).

      I have a metallic taste constantly in my mouth (even when not eating) and it seems to emanate from the sides of my tongue. The sensation is a sharp, almost painful one on my tongue, and it seems to overwhelm the taste of nearly everything I eat.

      I'm not sure if certain tastes are unaffected as of yet. One weird thing is that I didn't notice this until about four days ago, three days after the surgery. That is, everything seemed to taste normal during the three days following the tonsillectomy, but then my tongue suddenly started acting up.

      At first it was just an acute numbness to the sides of my tongue. That has mostly subsided now, and the main problem is the metallic taste. Perhaps the most annoying is that my favorite thing to drink, black tea, now tastes terrible. I certainly hope this improves, and most people's stories seems to indicate this will happen.

      Best,

      OH

      #78; Mon, 17 Dec 2007 17:12:00 GMT
    • Andrea

      Hi. I'm in the Uk searching for information about post op taste disturbance after tonsillectomy... my story is this, I had my tonsils out sept 2006 (here in the UK) at the age of 34 and suffered badly afterwards with pain and my throat closed up. Anyway i was quickly home again but wanted to die. the pain was unbearable and it continued unrelenting for three weeks, i was like a zombie on drugs. pretty quickly i noticed that my taste was not right, i could only eat a handfull of different foods, but was told to give it time.. anyway to cut a long story short 11 months on I can eat nothing with cocoa in it (i was properly addicted to chocolate) no cake, hot choc drinks nothing! it tastes so so vile i cannot bear it, and it also burns at the back of my throat. other foods are affected too. anything with a strong taste ie spicy, sweet some tomato based products, anything that has been chargrilled or bbq'd, there is loads. your story made me cry, you poor thing. i'm so sick of people telling me how lucky I am to have such a healthy diet. I cannot even enjoy a glass of wine anymore, though i have found some alcohol that i can drink, and my other complication is that my saliva glands overwork now, they tingle and my mouth fills with saliva constantly this started 7 weeks post op. i'm due to see my surgeon again in a couple of months, he said they would consider my taste/salia problems to be permanent after 1 year, i'm gutted and i could cheerfully punch the next person who says ooh no chocolate i need a tonsillectomy. the thing is it's so difficult to find any information about this problem, do you know where i start? I hope your doing ok, I would love to hear more about your taste disturbance... liz

      #79; Mon, 17 Dec 2007 17:13:00 GMT
    • is anyone else suffering with taste loss or over working saliva glands a year post surgery??
      #80; Mon, 17 Dec 2007 17:14:00 GMT
    • I had my tonsillectomy on August 9th. On August 17th I returned to the ENT for my check up and he had to cauterize the left side while I was awake. He said everything looked fine and I would be doing better by Monday. Monday... I wake up to feel blood squirting out in my throat so bad. I ran to the bathroom and blood just went everywhere from my nose and mouth. I was rushed to the hospital and I really thought I was going to die on the way. I ended up going in for emergency surgery to repair a broken blood vessel. I lost so much blood that I almost needed a blood transfusion.. they had the bags reserved for me. After a night in the hospital and a week of being scared to sleep, I am doing much better. I've lost 10 lbs. I've been eating things like pizza, hot dogs, mac & cheese, ect. They all taste great! I won't eat any sandwiches or anything like that yet because I'm still a bit scared. I tried soda (both pepsi and coke) and they have a lack of taste now. Also, I had my old favorite drink from Starbucks (Caramel Macchiato) and it was nasty! It really sucks. I haven't tied many other things but I hope this goes away...
      #81; Mon, 17 Dec 2007 17:15:00 GMT
    • Hello,

      My female age 36 friend just had a Tonsillectomy almost a month ago. She complains that she has been unable to taste or smell since the procedure. She seems in despair, but according to this board only a very small percentage have serious taste complications. It appears that it takes several months for the throat and taste buds to heal.

      I'm not sure what is going on with her sense of smell though, as there is next to no mention of it on this message board. Anyone care to comment?

      #82; Mon, 17 Dec 2007 17:16:00 GMT
    • i'm 17 days post op and i never experienced any loss of taste

      nor the taste of metal--i've read several posts talking about that as well.

      I wonder if it has anything to do with the type of removal they used for the tonsillectomy.

      #83; Mon, 17 Dec 2007 17:17:00 GMT
    • meterman

      I would be very concerned that her sense of smell has been affected, yes it's early days but that does sound worrying to me. She needs to go back to her doctor/surgeon and tell them, it could be a straight forward infection but it needs investigating.

      #84; Mon, 17 Dec 2007 17:18:00 GMT
    • wackytacky

      yes i've heard similar things about the way they remove them, but an interesting point maybe the size of mouth guard used, during the operation to keep the mouth open? i was told they can over stretch the nerves (like an elastic band) i'm very petite so i do wonder as to whether they used a normal adult guard on me?

      #85; Mon, 17 Dec 2007 17:19:00 GMT